FRQS Alliance requirements

[surchs]

The FRQS Alliance is looking for a data discovery node that is hosted by the Douglas Neuroinformatics Platform. At the moment the URL is here: https://neurobagel-alliancefrqs.douglasneuroinformatics.ca/querytool?node=All

Here is a list of the requirements we have discussed and agreed on:

• Ability to annotate
  • standard psychosocial questionnaires (PHQ9 etc)
  • diagnostic categories (ICD10), gender
• Ability to search for
  • age ranges
  • multiple parameters at once (e.g. ADHD and Autism)
  • presence of assessments regarding lifestyle factors
  • only aggregated data without providing access to data
• Ability to search from the ASMQ website

Here are the implementation issues:

• Create better coverage of clinical assessments #202
• Enable AND queries #203
  • always AND (i.e. not OR)
• Review of vocabulary alternatives for cognitive assessments
• Embedding the query portal on the ASMQ website: https://asmq.ca/
  • a link to a generic query portal would also be an option

Some of these capabilities (most?) are likely also relevant for other projects so we will split these off into their own milestones but track them here for the overall project